Summary Case Study Solution

Introduction

I am a nurse specialist with my responsibilities to be offered in respiratory ward. The respiratory ward includes patients of different ages suffering from cystic fibrosis representing worsen signs and symptoms of pulmonary exacerbation. (Newton, 2009)Cystic fibrosis is a genetic disorder and a long-term condition which is most commonly observed in Caucasian population. (Farinet, 2006)(Taylor SJC, 2014 )Therefore, a 24-year-old patient with Cystic fibrosis was considered for the analysis of the study. The patient represented persistent exertional dyspnea and cough with the production of scant sputum. On the physical examination of the patient, he demonstrated 91 percent of oxygen saturation with vital signs and normal body temperature. There had been a decline in the patient’s weight from 81.2 to 79.5 kg over a period of past three months.

However, the cardiovascular examination was found to be normal but the lungs demonstrated bilateral sounds of coarse breaths with scattered rales through the entire field of lungs. Clubbing was observed in extremities followed by normal abdomen and no peripheral edema. Additionally, there had been a decline from 50 percent to about 36 percent in the Forced expiratory volume at 1 second. However, resemblance was found in the baseline findings of the chest radiograph representing no obvious infiltrate or pneumothorax. The patient had been receiving a month-long course of inhaled tobramycin, aztreonam, and azithromycin based on the suspected pulmonary exacerbation due to the occurrence of acute-super infection that underlie in the chronic cystic fibrosis setting of lung disease.

Ethical and professional role

Although the prevalence is considered to be rare as compared to other chronic conditions, but the recognition of cystic fibrosis tend to increase with respect to time influencing the ethical and professional roles of nurses. (Ruge, 2016)The roles and responsibilities of the nurse in regards to cystic fibrosis tend to be associated with the involvement of patient, staff, and family in the process of patient care. The nurses are expected to be committed to the patients’ care with cystic fibrosis and devote all of their time to the center. Some of the key ethical and professional roles of a registered nurse mainly include:

  • Every patient’s advocacy
  • Being up-to-date with the practices of current treatment
  • Maintenance and teaching of clinical practices and skills
  • Research and education
  • Support and advice
  • Professional development
  • Support and advice

Cystic fibrosis is one of the demanding disease for the management of both the patient and the team.  The advocacy of patient and family is one of the essential role of the registered nurse. This is mainly due to the satisfaction and well-being of the patient in nursing care and successful advocacy to be achieved. (Eitan Kerem, 2005)Similarly, compliance with therapy in order to receive treatment is primarily dependent on patients rather than patients. In order to increase compliance, the involvement of patient in the process of decision-making is considered important. Considering onerous decisions regarding the use of life-sustaining technological approaches and transplantation, they are required to remain in the patient’s purview until the patient reaches the age of a consent. (R., 1997)Therefore, the patient being an adult has the right to take decision regarding consent whether he is willing to receive the treatment suggested or recommended by the nurse specialist.

Physical and psychological impact on patient

Despite the shortened mortality and increased burden of treatment, patients suffering from cystic fibrosis and their family members tend to be highly resilient. Most of the patients and their parents have reported normal psychopathology levels and high quality of life. Patients with cystic fibrosis tend to represent moderate to large sleep intervals and eating problems followed by poor compliance with ACT. The interface between the disease progression and biopsychosocial development of the patient in the adolescence stage is considered to be more challenging. This is primarily due to their independence and thoughts about their future plans. (Michelle M. Ernst, 2011)

The diagnosis of cystic fibrosis in the patient was followed by an episode of hemoptysis at the age of 17. (Farinet, 2006)The physical impact of cystic fibrosis on the health and well-being of the patient mainly included an effect on the sweat glands resulting in high concentration of sodium and chloride ions. Due to the thick secretion in the sperm canal, the fertility of the patient is likely to be affected greatly blocking the passage of sperm release. (UIHC, 2018)(Peter R. Durie, 2004) With a decrease in the patient’s weight, the patient is likely to represent high risk of thinning of bones. (Staff, 2020)Similarly, the sticky and thick mucus is blocking the pancreatic duct resulting in the prevention of enzymes to reach small intestine for the digestion of food which leads to malabsorption. (M.N.Sheppardf, 2002)Thus, incomplete digestion is known to result in the eating problems…………………………..

 

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